Click below to read the report.
Click below to view graphic.
It might mean swapping out fluorescent light bulbs, implementing a flexible work schedule, or providing a dark room where staff can recover from migraine attacks.
During the past year, there’s been a clear shift in how patient organizations are engaging with the Institute for Clinical and Economic Review (ICER) and its value assessments of new, and often first-of-their-kind, medicines.
Click below to read full paper.
Migraine patients deserve access to innovative therapies. Ready to get involved? Watch their story and join the fight for access now.
Social Share Graphics
Add migraine to the long list of battles faced by veterans of the United States Armed Services.
In a Tuesday policy panel sponsored by The Headache and Migraine Policy Forum, experts from across the health care and veterans support spectrum weighed in on how migraine and headache disorders impact veterans – and whether these women and men can access the treatment they need.
The conversation highlighted several issues:
“If you’ve seen one patient, you’ve seen one patient,” explained James R. Couch, Jr., MD, PhD, the acting medical director for the Comprehensive Inpatient Integrated Rehabilitation Program at Oklahoma City’s VA Medical Center. “Don’t try to mash them all together and say ‘this should work for everybody.’”
Iraq and Afghanistan’s Impact
“These soliders were changed while they were protecting us and our freedoms,” noted Alan Finkel, MD, who treats active-duty soliders at Fort Bragg. Calling affected veterans, “armies of one,” Dr. Finkel alluded to migraine comorbidities such as severe depression, PTSD, sleep disturbances and anxiety.
“I am amazed on a daily basis at the breadth of the services that are available and can be made availalbe to our veterans,” noted Donald S. Higgins, MD, the national program director for neurology at the Veterans Health Administration. Dr. Higgins noted that life-changing, cutting-edge therapies are available at the VA system, as are telehealth and teleneurology applications.
Panelists agreed on the need for more trained headache specialists. “We used to get no lectures on headache in medical school,” Dr. James Couch noted, adding, “Now we get two to three or more. Gradually, we’re improving. This should continue.”
Christopher Meek, co-founder and CEO of SoldierStrong Access, described the impact of stigma on veterans and active duty servicemembers. The “warrior effect” can keep veterans from acknowledging their disorder and seeking treatment. Having migraine or another headache disorder “makes them feel like a failure,” Meeks explained, “It takes them to a dark place.”
David Charles, MD, neurologist and chairman of the Alliance for Patient Access, moderated the panel.
The Headache & Migraine Policy Forum advances public policies that promote accelerated innovation and improved treatments for headache and migraine sufferers. Its policy forum coincided with more than 225 Capitol Hill meetings as part of the annual Headache on the Hill advocacy day, sponsored by the Alliance for Headache Disorders Advocacy.
Headache on the Hill brings health care professionals, migraine advocates and patients to Capitol Hill to raise awareness about the impact of headache and migraine disorders and to seek increased research funding. This marked the event’s 11th year.
Who feels the impact of headache disorders and migraine? More people than you may think, according to a new video from The Headache & Migraine Policy Forum.
Collectively, 39 million men, women and children in the United States and more than 1 billion people worldwide experience migraine, the third most prevalent illness in the world. As the video explains, migraine has emerged as a common problem for veterans, particularly those who have been deployed or have suffered a traumatic brain injury. While some headache disorders disproportionately affect women, others are genetic, afflicting a family one generation after another. Those who have experienced an injury or stroke are another affected group.
Read more at Institute for Patient Access.
What’s worse than battling a debilitating, painful and costly disease? Having to convince people that it’s real.
Yet that’s just what many of the 40 million Americans with migraine and headache disorders must do. In a panel discussion during the recent National Summit on Balanced Pain Management, advocates pinpointed several common myths– and described how stigma compounds the pain of headache disorders.
Read more at Institute for Patient Access.